In many families, support for a disabled child has always rested on the shoulders of the parents. But over the years, a reality sets in: parents grow old, sometimes become exhausted, and begin to think about the future. It is often at this moment that siblings ask themselves a fundamental question: how can I contribute to the well-being of my brother or sister without forgetting myself?
Supporting does not mean doing everything
Taking on the role of support does not mean becoming a full-time caregiver. Each brother or sister has the right to set their limits. What matters is finding a form of commitment that is realistic, sincere, and sustainable. This can be a regular presence, a weekly phone call, involvement in certain decisions, or simply being a stable emotional anchor.
Daring to start the discussion with the parents
Too often, future topics are postponed out of fear of creating tension or out of modesty. Yet, parents are often relieved when a child dares to break the silence and ask questions: “Do you have a plan?”, “How could I help, even a little?”, “What worries you the most?” These discussions are open doors to more clarity and family solidarity.
Knowing the basics of the plan
Without being experts, siblings benefit from understanding certain key elements:
- the functioning of the RDSP (Registered Disability Savings Plan);
- the existence of a trust or a representative;
- the daily needs of the brother or sister;
- the key people in their environment.
This knowledge allows acting with more confidence and being able to respond in case of emergency or temporary need.
Finding one’s own way to contribute
Some siblings choose to have a more administrative role, others an emotional or logistical role. There is no single right way to participate. What matters is being able to say: “I am here, in my own way.”
At Finandicap, we also support brothers and sisters who want to take their place in this life relay, even by giving discounts on fees for members of the same family. Because the future of a person with a disability is not only the parents’ business. It is a matter of connection, love, and transmission.