When a child is diagnosed with a disability, one parent — often the mother — may pause their career to become the primary caregiver. It is a courageous decision, but one that requires careful thought.
Is it sustainable?
Stopping work reduces the family income. Before making this choice, ask yourself some key questions:
- How much revenue will be lost?
- Can we manage on a single income?
- What support is available? (tax credits, home care wage subsidies, subsidized respite)
Testimonial – Nathalie:
“I stopped everything. We managed for a year, but it was too hard. I went back to work part-time and an educator comes a few hours a week. I realized I could be there for my child… without losing myself.”
Thinking long term
Being out of the workforce for a long time can reduce your retirement income, savings, and access to some social protections. It is sometimes possible to make voluntary contributions to certain plans and to receive specific credits for family caregivers.
Mental health matters too
Being a full-time caregiver can be exhausting. It is important to:
- build a support network
- plan for respite, even occasionally
- ask for help without guilt
Testimony – Karim:
“I thought everything depended on me. Then I burned out. Now I give myself two respite weekends a year. I’m doing better, and so is my son.”
Other factors to consider
- Other children, who may feel overlooked
- Your relationship as a couple, which can lose its balance
In summary
Becoming a caregiver is neither an obvious choice nor a failure. It is a decision that must be made with clarity, supported by a plan, and without losing yourself along the way.